'My girl has same disorder as Katie Price's Harvey - I don't know how long she'll live'

has shared a heartbreaking admission about her son Harvey, as she confirmed the 22-year-old has reached a 'dangerous' weight. Mum Min Kaur, , knows all too well the battles and emotional toll the former glamour model, 46, is going through.

Harvey, 22, has a rare genetic condition calledwhich means he's always hungry. As a consequence of his uncontrollable hunger, he is now battling life-threatening . The disorder can also cause learning difficulties and behavioural challenges.

Min's daughter Sophia's eating habits aren't anything to worry about right now, her dietitian said that the excessive appetite can start from the age of two. Although she doesn't know how long her daughter has to live, Min, 45, bravely opened up about trying to stay positive about the situation.

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Katie Price previously told Harvey is at risk of a heart attack because of his condition and that "he's not getting any smaller". She added: "He's putting on weight. It doesn't matter what we do." Katie has been trying to help Harvey lose weight as she fears he has reached a danger level of overweight, but has been left .

Taking to social media over the weekend, Katie shared that Harvey is now almost 30 stone. Speaking on Snapchat, the content creator said: "I'm so heartbroken and gutted that his weight is just going up. I just googled it in stones, 188kg is just a few kg of being 30 stone."

Experts have told Min she will need to prepare for when her daughter gets older, including putting a lock on the fridge. "I'm learning as I go - I feel prepared to start keeping an eye on her weight within the next few years," said the parent from Newcastle. "I don’t know how long Sophia is going to live - at the moment, I’m trying to be as positive as I can.

“I’ve got an excellent care team and I’m learning as I go - I feel prepared to start keeping an eye on her weight within the next few years. Sophia's doctors say she’ll live longer if she can maintain a healthy weight - they just can’t say how long."

As an older mum, Min decided to get Sophia screened for Down syndrome while she was 12 weeks pregnant. Had a screening been available for Prader-Willi syndrome and other genetic disorders, she says she would have undergone them too.

The mum-to-be planned for an induced labour at Newcastle's Royal Victoria Infirmary in January last year but with the drugs unable to start her contractions, she was taken for a caesarian section and Sophia was born at 2.22am on January 14, weighing 6lbs 3oz. Min immediately noticed she wasn’t making any noise, was freezing and would fade in and out of consciousness. Sophia was taken to ICU and a week after she was born, a genetic blood test came back positive for Prader-Willi syndrome.

"It was so scary," said Min. "I kept blaming myself but my care team reassured me I hadn't done anything to hurt her. I didn't know anything about Prader-Willi at all - of course, I'm more clued up now. They say she'll have a shorter life - and won't have an off-switch for eating."

The tot spent four weeks in the intensive care unit, before being discharged back home with Min - who has needed to give up work in order to look after her full-time. Sophia, sees a physiotherapist every Thursday to help learn core movements like crawling, isn't expected to hit her milestones at the same rate as babies without her condition.

And she will need healthy meal plans to prevent obesity. "I'm really going to have to be in control of her food as she grows up," said Min. "It's not going to hit her until she's two years old - as long as she doesn't get obese, she should be able to live a longer life.

"At the moment, she seems to know when she's full - she puts her lips together when she doesn't want to eat any more. She's also a healthy weight."

While visiting Sophia daily in the ICU, Min spent all of her £5k savings on travel, food, urgent home repairs and sensory toys for the tot. She hopes to adapt her home to meet Sophia's needs - but is currently unable to afford the costs after giving up work.

CEO of Prader-Willi Syndrome Association UK, Jackie Lodge, told the : "PWS is a rare genetic condition causing an overwhelming and uncontrollable drive to eat that can be life-limiting, as well as learning and physical disabilities. We know that some adults with Prader-Willi Syndrome have been prescribed weight loss medications under close medical supervision, often for diabetes and on an individual basis.

"There is currently no clinical evidence confirming the effectiveness for weight loss for individuals with PWS. These weight loss medications may pose serious health risks for people with PWS due to potential adverse side effects and treatment would always require close medical supervision.

"These medications are becoming increasingly available and should never be purchased online for people with PWS. The Prader Willi Syndrome Association UK (PWSA UK) can provide advice and information about supporting someone with PWS including managing diet and clinics for people with PWS."

An earlier version of this story was published in February 2025.

Min and Sophia's GoFundMe can be found